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Along that theme, my wife buries some of her inconvenient supplements (like the calcium that you need to take apart from others, and itself,) in a smoothie that she makes and freezes to hide the large amount of potassium that she needs (not normally a DS thing, just her). It lets her have her "ice cream" to look forward to and it's easy to split into two servings so that all of her calcium can go into it and is still spaced out appropriately.
1st support group/seminar - 8/03 (has it been that long?)
Wife's DS - 5/05 w Dr. Robert Rabkin VSG on 5/9/11 by Dr. John Rabkin
So good to know other long termers have had a similar path! I have insurance, but it won't pay for PRolia. I have upped my dose of vitamin K2 and I am taking a new supplement that has had some experimental success for old bones, pyrroloquinoline quinone (PPQ), but I just started that. My fractures healed well and they said the bone hasn't reached osteoporosis yet. Estrogen is supposed to be the most natural way to improve old bones, so I am going to ask for it at the next visit. Will do another bone density test this fall to see if these steps have helped. Continued success to you too!
Congrats Elisa. I agree with many of the things you've said. I'm 16 years post-op and have many of the same issues you have dealt with over the years.
Have you had any treatments for your osteo. I've done Reclast which didn't really work, so now I'm going to try Prolia. Sorry you've had some broken bones. That's my biggest fear.
But #9 is spot on - love my DS and it has definitely changed my life for the better too.
Continued success.
Janet in Leesburg
DS 2/25/03
Hazem Elariny
-175
I supplement my unfun to swallow vitamins with a few gummy vitamins (low or no sugar). This just gives me something to look forward to along with the part I dont like and makes it more of a pleasant thought. Its not an ideal solution but it forces me to do the right thing so that little added extra sugar/calories at 10 years out isn't killing me and it makes me happy and compliant.
To those who have posted replies: Thank you. Though your replies are mostly harsh, they come from a good place and if I'm just being a baby, which sounds to be true, someone needs to say that.
I will make a renewed effort to take my supplements. You're right, I don't want to die or get crazy sick. I do want to change poopy diapers and do my taxes, and I don't want to lose my teeth.
Thanks for the motivation.
When each of us chose to have the DS, we chose a lifetime commitment to taking vitamin and mineral supplements. There is nothing thrilling or exciting about doing this. It's just a part of our life. Does brushing your teeth excite you? I bet you do it anyway, just like the other examples Patty gave you.
The commitment you made isn't to your surgeon or your spouse, your children, or to us. It's a commitment to yourself. If you can't find it in yourself to do something so simple to maintain your health, get yourself to a therapist and find out why. It's a hell of a lot easier than living with morbid obesity.
Larra
Set some timers on your damn phone and take them with THEN take them! You are going to lose your teeth... Do you like gumming food? Better get used to it...
HW: 398.8 SW:356 GW: 175 CW:147
We tried but the treatment didnt work. So I went to a gastroenterologist today and they are sending me for an endoscopy and ct scan to make sure I have no obstructions or inflammation and barring that we have to look at more aggressive acid treatment.
Did you treat the "eh, acid reflux"? If not, I'd start there. Are you staying hydrated?
If all else fails might be worth checking back in with Dr Greenbaum, or consulting via phone with Dr. K in California.
